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Patient and Public Involvement and Engagement in research – A …

 
English Text : Guideline Project management Engagement ... Collaboration Public Participation in Science and Research ...

This guide is for learning why and how to meaningfully involve patients and the public in research. In Chapter 1, you find a detailed description about what Patient and Public …

Short guide on patient partnerships in rare disease research projects

 
English Text : Guideline Best practices Engagement ... Collaboration Engagement ...

This guide has been developed with the help of a working group comprising of patient representatives and research funders and has been submitted for review by independent academic researchers. Its …

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